Charity Secretary

About us

Spotlight YOPD raises awareness and support for those diagnosed with Young Onset Parkinson's.
 
We are a small charity focused on a rare medical condition – Young Onset Parkinson's and we have some unique challenges and opportunities. For example:

• How to educate a medical profession on a rare disease. Even neurologists are not well informed about YOPD let alone GP’s who mostly have not heard of the condition.
• Working with researchers and companies who facilitate whole genome analysis

We have global visibility working with a number of large organisations such as the World Parkinson's Congress and David Phinney organisation. We also have a growing number of affiliates who are using our model to build a support network globally.

About the role
 
Spotlight YOPD is looking for a Charity Secretary as we have grown to a size where we now need to increase our governance function.

The candidate will work directly with the Chairman and the Deputy, who also looks after Safeguarding. There may also be occasion to work with the Trustee responsible for Finance and partnerships.
 
The role is pro-bono and we would be happy to engage someone who is not fully qualified and who is looking to benefit from the experience of working with a charity with global connections.

The role requires a time commitment of approximately half a day a week.

Duties/Responsibilities

• Organisation and attendance at Trustee Board meetings
• Taking minutes of the Trustee Board meetings and following up all actions
• Be the main organiser of the Trustees Annual Report
• Responsible for all the filing arrangements and the completion of annual returns to the Charity Commission
• Maintain Trustee records including declarations of interest register, DBS checks and L&D records
• Advising on governance issues and ensuring compliance with the regulatory environment
• Ensuring Policies, including safeguarding and GDPR are maintained current and approved
• Support the Data Protection Officer in meeting the requirements of GDPR / Data Protection act 2018

Skills/Experience

• Excellent organisational and time management abilities
• Attention to detail
• Knowledge of governance and how this is transferable to a small charity
• A qualification with CGI, or an intent to obtain a qualification with CGI

Personal Attributes

• Professional in conduct
• Due regard to confidentiality and discretion
• Strong interpersonal skills with the ability to work with potentially vulnerable adults

To apply

Please send your CV and cover letter via the 'Apply' button. If you have any queries about the role, please email Nikki Cole on Nikki@eloc0.co.uk