Trustees x 3

Join our board and together make it possible for people with myeloma to live longer and better lives.

Location: London and Edinburgh

Time commitment: Up to a day a month

Closing date: Monday 23rd June

Together, we are making it possible to live longer and better lives with myeloma. Through research and treatments, we find new ways to a cure. As the only UK charity focused exclusively on myeloma and related conditions, we have transformed treatment and care over the past 27 years, helping to quadruple life expectancy for many patients. But we need to go further, faster – because people with myeloma can’t wait. We are uniquely placed as an organisation to improve the lives of people affected by myeloma by investing in innovative, life-changing research, advocating for patients to get access to new treatments on the NHS, and providing free information and support services to patients and their families.

We are at a pivotal moment in our journey. Our new strategy, developed in collaboration with myeloma experts alongside clinical, research, and policy leaders, focuses on three core areas: preventing myeloma, treating myeloma, and living well with myeloma.

In the first two years of the strategy we have already made significant impacts.  We have convened global leaders in early stage myeloma to investigate prevention and help develop our forthcoming precursor condition roadmap; secured the provision of four new myeloma treatments, including overturning initial restrictions on who could access two next generation therapies; and awarded two new research grants looking at improving quality of life… There is more work and achievements to come.

We’re enhancing our ability to address emerging and unmet needs while implementing comprehensive plans to reach more people, improve engagement, and grow our income, as right now, the vast majority of our income is from donations. Through our innovative research programs, advocacy work, and comprehensive support services, we unite researchers, healthcare professionals, and patients in our mission to find a cure while ensuring no one faces myeloma alone.

About the roles

We’re seeking three new Trustees to join our Board in 2025 as others come to the end of their terms. You’ll play a crucial role in leading Myeloma UK into the next stage of our development, providing strategic leadership during an exciting period of growth and change.

Working closely with our Chair, Board, and executive team, you’ll take an active role in our governance structure, and you’ll build an effective relationship with our CEO and other members of our senior leadership team, providing both challenge and support as we pursue our ambitious goals.

Who we are looking for

Ideally we are looking for one Trustee who will bring experience as either a Clinical Nurse Specialist (CNS) or a Healthcare Professional. We are looking for two Trustees who bring personal experience of myeloma either directly or through a loved one. You will bring personal lived experience to our board, alongside your professional skills and experience.

We’re looking for clear and independent thinkers with sound judgment and an appropriate approach to risk. Your excellent influencing and negotiation skills will be complemented by your solution-focused mindset and ability to see the big picture while remaining pragmatic. As an intellectually curious individual, you’ll be comfortable navigating complexity while building strong relationships through your high emotional and cultural intelligence.

Most importantly, you’ll be collaborative and highly inclusive, fostering trust and valuing different perspectives. You’ll know when to challenge constructively, when to hold back, and when to support, while demonstrating an unwavering commitment to equality, diversity, and inclusion.

Time commitment

The role offers a balanced mix of virtual and in-person engagement designed to maximise effectiveness while being mindful of trustees’ time. The Board meets quarterly, with two of those meetings online (approximately 3 hours each) and two significant in-person gatherings that form the cornerstones of our governance calendar. Our November board meeting is in London and includes a full-day session where we engage in board development and conduct strategy sessions. The second in-person meeting takes place in Edinburgh each May — a rich, one-and-a-half to two-day residential event combining formal board meetings with strategic planning, board development work, and our annual staff awards celebration.

Trustees usually join at least one of our sub-committees. Sub-Committee meetings usually take place online for circa 2 hours. Overall including reading board papers and ad hoc conversations, we expect the time commitment to be the equivalent ofup to a day a month.

We provide comprehensive onboarding support, which can include listening to our Information Line calls to understand our frontline services, briefing sessions with Executive Leadership Team members, and deep dives into our research and services – all designed to bring our mission to life and ignite your passion for our cause.

This is an unremunerated voluntary position, though reasonable expenses, including overnight accommodation for the London and Edinburgh meetings, will be reimbursed for Trustees who need to travel there. We want to ensure our board is geographically representative and so Trustees can be based anywhere in the UK.

Join us in our mission to transform the lives of people affected by myeloma. Together, we are the cure.